Where to Begin? How my seizures started and the long road to getting better.
Hi and welcome to my first blog post. I am not even sure where to start, but here goes nothing. Four years ago, in June 2021, I experienced my first seizure and while we (my family and I) didn’t know at the time what was going on, it wasn’t too long after that first episode that I was diagnosed with Pyschogenic Non-Epileptic Seizures or PNES for short. Now, before we get too far into the rest of my journey early on, I would like to explain what PNES is and how it is different than any type of Epileptic Seizure. So, as you may have guessed, PNES episodes are non-epileptic in nature, but that doesn’t mean they don’t look like or feel like epileptic seizures, especially to the person going through the non-epileptic seizure episode. Now, you may be thinking, what does she mean by they’re similar to epileptic seizures, but yet very different, well let me explain what a non-epileptic seizure episode looks like, from someone who’s had and still has them. ...